The Collectives
About
The Connection LHS includes various activities to collaborate with and learn from young people, family members, clinicians, researchers, and other stakeholders to improve services for early episode psychosis.
For people with lived experience of psychosis and their family members, the main opportunities include:
- Joining the Lived Experience Council or the Family Advisory Council.
- Attending presentations and programs to discuss issues.
- Occasional paid consultation on research projects.
- Sharing art, music, stories, profiles, etc.
- Signing up to receive future research, feedback, and leadership opportunities.
- Sharing your unique perspective as a family member or someone with lived experience with psychosis to better serve CSC participants.
Lived Experience Collective (LEC)
The Lived Experience Collective (LEC) brings together current and former participants in early psychosis programs in Pennsylvania and Maryland to help shape Connection Learning Health System's (CLHS) research and grant-funded projects. The LEC meets monthly for 90 minutes to provide valuable input and guidance that advances the goals of CLHS.
Who is in the Lived Experience Collective (LEC)?
LEC members include:
- Current and former participants in Coordinated Specialty Care (CSC) programs in Maryland and Pennsylvania.
- CLHS staff and researchers with lived experience of psychosis.
When does the LEC meet?
- Meetings take place on the 3rd Tuesday of every month from 4 - 5:30 p.m. ET.
- LEC members receive $50 compensation for attending each monthly meeting.
Contact
If you have any questions about the Lived Experience Collective, please contact:
Sara McNemar
University of Pittsburgh
412-974-7633
Family Member Collective
The Family Member Collective is open to all family members interested in learning more about CLHS activities or getting involved.
You are invited to attend our monthly online Family Perspective Meetings, where family members share their experiences and insights to help improve coordinated specialty care (CSC) in Maryland and Pennsylvania and meet other family members with a loved one experiencing psychosis. Attend only when you want to; there is no requirement or obligation!
We send a monthly email with family-focused resources and opportunities to contribute to CLHS projects and efforts outside of meetings. You will also receive invitations to the CLHS family-focused online speaker series and other programs.
Whether you are new to CSC or have a lot of experience, it is valuable to share your perspective as a family member of someone affected by psychosis. Your voice matters. It can make a difference in shaping the future of care and support for families! Please contact us for more information and to get on our invitation list.
Contact
Allana Calahatian
Sheppard Pratt
443-970-4494
Bette Stewart
University of Maryland School of Medicine
*Connection Learning Healthcare System (CLHS) is a collaboration between state, academic, and community program partners in Pennsylvania and Maryland to support and improve early psychosis services for young people and families.